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Patient-relevant outcomes capture those outcomes that are relevant to the patient, such as health-related quality of life or life expectancy.
Many of the efforts overlap with more than one building block and so expected outcomes capture numerous impacts of QI.
The development of novel PRO tools for investigating UC is warranted because current outcomes capture only a portion of the impact of the disease on patients' lives and may not accurately measure a patient's experience with UC [ 22].
One possible explanation for these findings might be that activity related outcomes capture the learning of basic motor function and functional skills that are learned during young age, and that the social skills are more evident during preschool age [ 11].
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We think that using pre-disability labor market outcomes captures much of what we would want from these variables, but it may not go all the way.
The median epidemic size by the end of the simulated period and percentage die-out for each scenario, were the key outcomes captured.
Ongoing effectiveness trials should focus on clinically relevant outcomes captured by our Delphi survey.
Additionally, the dataset contains the visit outcomes, capturing the full spectrum of information: patient symptoms, audiotaped communication, and visit outcomes.
Patient reported outcomes, captured via a web-based questionnaire, are collected at both baseline and the end of the study.
The additional services covered in the indicator set are largely aimed at younger patient groups (e.g. child health surveillance, emergency contraception, maternity services), whereas, the outcomes captured in this study (admission and death) are concentrated amongst older people.
Children with doctor-diagnosed asthma included only a third (8 of 24) of the children with severe symptoms consistent with asthma, whereas children with any one of the four asthma outcomes captured 23 of 24 children with severe symptoms.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com