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This exploratory research identified patient empowerment as an important patient outcome, valued by patients and genetics clinicians.
An optimal PROM would encompass all aspects of outcome valued by each patient and perceived as important by the healthcare provider.
The valuation task for the SF-6D used the worst possible health state ('pits') on the SF-6D as is the worst outcome, valued with the standard gamble method.
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Three ante-mortem tests with continuous numerical outcome values (continuous outcome) were used, namely, SICCT and two recently developed FPA tests termed SENTRY 100 and GENios Pro [25].
There was variation in patient characteristics and in baseline outcome values between studies, suggesting variation in sedation practice.
The reality remains that artificial intelligence evolution will have no inherent tendency to produce or create outcomes valued by humans and there is little reason to expect an outcome desired by mankind from any super intelligent machine.
Recognizing the importance of the patient perspective makes the practices and outcomes valued by the patient more critical.
This should include moving from volume to outcome, value-based payment models.
But I couldn't tell you what our outcome values are.
Gourley, S. L., Zimmermann, K. S., Allen, A. G. & Taylor, J. R. The medial orbitofrontal cortex regulates sensitivity to outcome value.
Parkes, S. L. & Balleine, B. W. Incentive memory: evidence the basolateral amygdala encodes and the insular cortex retrieves outcome values to guide choice between goal-directed actions.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com