We conducted 12 semi-structured interviews with patient organisation representatives and members of Advisory Committees that provide advice to the Australian Department of Health and employ Health Technology Assessment (HTA) as an evaluation framework.
Patient organisation representatives reported interacting with other stakeholders (especially industry) to increase the influence of their conception of evidence on decision making.
The findings demonstrate that the involvement processes currently used are deemed inadequate by both patient organisation representatives and Advisory Committee members, but for different reasons connected to how different stakeholders conceptualise evidence.
Advisory Committee members viewed evidence as encompassing clinical outcomes and patient preferences, whereas patient organisation representatives tended to view evidence as encompassing aspects not directly related to a disease entity, such as the social and emotional aspects of patients' experiences in living with illness.
35 policymakers, 35 healthcare workers and 21 non-governmental organisation representatives involved in HIV prevention.
The final workshop in May 2015 was attended by 23 partner organisation representatives (13 clinicians, 10 patient and carer representatives).
Informed consent was obtained from each participant (verbal for PWD and written for organisation representatives) and no inducements were given.
The United Nations Expanded Theme Group governed the Joint Programme, a body including three representatives from the Ministry of Health, six United Nations agencies, five donors, and three international and three national non-government organisation representatives.
The key informants could include occupational health practitioners, public health professionals, social scientists, community organisation representatives and well-informed people from different economic sectors.
In the Fall of 1995, ninety farm organisation representatives took part in a workshop on development communication where they developed an Internet based computer communication system.
