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More than 85% of parents consented to each of the optional study procedures.
Optional study procedures were also offered, such as receiving recessive carrier status and deposition of data into research databases.
The "social network index" is based on the "social network scale" ("Berkman-Index") of the Alameda-County-Study [ 30] and is detailed and reproduced in the WHO: MONICA Psychosocial Optional Study (MOPSY) [ 29].
It is stated that there are 'additional risks of loss of privacy' if parents consent to the optional study procedures of sharing genetic and clinical data with other BCM investigators or the de-identified release of genetic information into scientific databases.
Most parents consented to the optional study procedures, including collection of an additional 2 teaspoon parental blood sample for research purposes (94%), sharing of de-identified genetic and clinical data with other BCM investigators with IRB-approved protocols (87%), and deposition of de-identified genetic and clinical data into scientific databases (87%).
Information about required and optional study samples and procedures for the patient is replaced by a description of optional parental blood samples that may be provided for interpretation of variants identified in the patient's germline WES report and additional research procedures.
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In addition it was present in a variety of categories ranging from optional studies to confidentiality and storage of samples, among others (Table 1b).
Imaging sub-studies include an optional CT study and an optional MRI study.
Set aside some time to study the optional subject too.
The memorandum said cadets should not be made to feel that they would get better jobs by going to optional Bible study sessions.
One of two experts commissioned by Donnelly and Wiltshire to specifically examine the history curriculum, Professor Gregory Melleuish, suggested it lacked coherence, contained too much optional depth study and not enough core content, and was rigid and overly prescriptive.
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