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Something where they have to take on a caring role and think about why doctors can't cure everybody.
Other family members who want to take on a caring role are often pushed away, dismissed as "inappropriate" without any explanation.
Yet most carers are ill-prepared to take on a caring role [ 2], with many feeling inadequately supported [ 9].
When taking on a caring role, carers explained how they could feel isolated as they had to devote so much time to the patient in order to attend to their needs.
Very few had social support, and for some, their being at home meant that they were the family member available to take on a caring role for a relative, which incurred further stress, ill health and isolation (see online supplement 5).
The carers may actually need more help – either some respite or to go on a "caring and coping" course.
Similar(47)
The Americans said they would leave the Middle East on a "care and maintenance" basis.
"Love you, bro," scrawled a sister from California on a care package to Ramadi, Iraq.
The centre has been working on a care management programme to ensure patients also see the right person, at the right time in the right place.
The local chief of Oeta says that the place is to remain merely on a care-and-maintenance basis until the peace conference.
He argues that NHS managers need to examine the points where interventions are delivered on a care pathway and whether these could be delivered effectively using telehealth.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com