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Almost half of service users (N=138, 45.7%,) and healthcare professionals (N=143, 55.9%) reported having been involved in some form of user involvement activity.
The number and percentage of service users and mental health professionals involved in one or more areas of user involvement are presented in Table 4.
Service users also highlighted the negative impact of user involvement on the health of those of those who become involved (n= 5).
A common criticism of user involvement is that it suffers from a lack of representativeness of those involved.
Social work has been the pioneer of user involvement internationally – in its education, research, policy and practice.
Writing in 1991, Professor David Brandon said that to include people who use services in recruitment was the pinnacle of user involvement in the management of organisations.
Now the findings from a UK survey provide a picture the state of user involvement in end of life care from the perspectives of palliative care social workers.
The rhetoric of "user involvement" carries less conviction as the sector is reshaped more by a push to privatisation than by the appeal for parity of esteem with physical health policy.
And it's precisely this kind of user involvement that has been a key driving force of Speaking Up, a former winner of the Guardian Charity Awards, whose frontline work reaches some 10,000 people.
The different levels of user involvement are described.
Q: You mentioned that the amount of user involvement here is unprecedented.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com