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"A third of those afflicted were children.
The vast majority of those afflicted are women.
The progress made would have been impossible without the cooperation of those afflicted.
Marathon said that, currently, only about 7 to 9percentt of those afflicted with Duchenne have access to deflazacort.
A third of those afflicted by encephalitis lethargica died in its acute stages, in advanced states of coma or sleeplessness.
But very few of those afflicted in this fast-growing epidemic get anything like the best treatment.
Cosmetic surgery may be helpful in improving the appearance of those afflicted with the inherited form of the disease.
While its rate of AIDS may be the highest, about half of those afflicted get free drugs.
Yet two-thirds of those afflicted do not know they have it because they have no symptoms.
Up to 90percentt of those afflicted remain undiagnosed or misdiagnosed, only a handful of doctors specialize in the disease, and there is no effective disease-modifying treatment.
Little is known about scleroderma, and even the number of those afflicted can be only broadly estimated, making appeals for money more difficult, she said.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com