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On the one hand it serves to assemble and articulate various productive activities that tend to be dealt with separately: the participation in clinical research trials, the donation of bodily materials and tissue samples for research or for reproductive purposes, the carrying out of gestational surrogacy, the sharing of valuable bio-information.
Some biobanks are collections of bodily materials from health-care settings (tumor samples, dried blood spot cards from neonatal screening).
For example, a study involving collection of blood samples would be preceded by an assessment of the ethical beliefs and attitudes pertaining to blood, bodily integrity, storage and use of bodily materials alongside a more general enquiry into the understanding of research, the standing of the research team, the local health economy etc. in the community being recruited.
Both have asked whether the most suitable analogy (in regulatory terms) falls with organ/tissue donors or gamete donors; donors of other bodily materials (NCOB onlyww), or a new 'middle ground' classification providing 'a unique set of rights and responsibilities'xx.
The statement regards population studies, where participants have agreed that their bodily material and information may be used for the advancement of science.
wwThey do not define further what is meant by 'other bodily material' but see further NCOB.
In addition, national or institutional regulations may apply when work is done using human bodily material.
Hence, the direct analogies with the donation of tissue, blood, other bodily materials and organs (with the exception of ovaries), breaks down.
Unlike most other types of donation, ie organyy, tissue, blood and other bodily materials, mitochondrial donation not only alters the recipients' genetic germline, but – for female offspring who go on to have their own children – this change is inter-generational.
These materials can be existing bodily materials or materials specially created.
Moving beyond conventional design-thinking, and by following Merleau-Ponty's philosophy, design of sustainable practices are seen as a situated, emergent process of bodily beings and dynamic, material, social and systemic embodiments in which practices are inter-relationally and meaningfully enmeshed.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com