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We highlight the unique technical and process considerations relevant to this patient population, as well as the collaborative multistakeholder work required for adolescent patients to experience the potential benefits of both electronic medical records and participatory health information technology.
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We then organized into multistakeholder working groups to identify gaps in knowledge and make priority recommendations for critical research to fill those gaps.
This large-scale, in-depth, mixed methods, multistakeholder study of a contentious issue demonstrated that incentives for local health service providers to meet targets for smoking cessation in pregnancy or breast feeding provoked mixed views, with health visitors and maternity staff more in favour than doctors.
A model example of the former is the Alliance for Water Stewardship, a multistakeholder group that is working towards the development of an international water stewardship standard that will guide partnerships at a national and watershed level.
OMERACT started out as an informal gathering of researchers interested in outcome measurement in rheumatology 33 and evolved into a biannual 5-day working conference with a multistakeholder approach.
Our study, therefore, addresses multistakeholder perspectives about ocular GT trials, focusing on choroideremia.
All the states under the purview of the study have a multistakeholder decision-making body.
These recommendations were worked out through a multidisciplinary and multistakeholder consensus process, promoted by 'Rare Cancers Europe' (RCE).
As such, it is a curious thing to cite fear of governmental involvement as a reason to back away from a consensus-based, multistakeholder approach such as W3C's Do Not Track working group.
Next month, we are leading a multistakeholder workshop whose stated goal is to "establish a common view on possible recommendation-track work in the Web privacy and tracking protection space".
Working sessions were held throughout the WCDRR as part of the multistakeholder segment.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com