Patient registries are instrumental for medical research.
Thus, the use of multiple data sources for estimation of the "true" incidence of surgically treated PJIs led to a 40% higher estimate than reported by national arthroplasty and patient registries alone.
The registry conductance conforms to the German national guidance on patient registries [ 12].
The nationwide prevalence study data were based on data from five health regions; north, middle, west, and south, retrieved from the Norwegian Multiple Sclerosis Registry and Biobank, the Oslo Multiple Sclerosis Registry and the Norwegian Patient Registry, the Norwegian Prescription Database and Statistics Norway.
We retrieved data on the distribution of MS in Norway on December 31, 2013 from the Norwegian Multiple Sclerosis Registry and Biobank and the Norwegian Patient Registry.
Furthermore, we retrieved data on people with MS from the Norwegian Multiple Sclerosis Registry and Biobank and from the Norwegian Patient Registry on December 31 , 2013to calculate updated figures for the prevalence of MS in Norway.
Genzyme has set up a patient registry to follow the long-term progress of patients.
They should also establish an electronic patient registry and track treatments and complications.
The Cervical Dystonia Patient Registry for Observation of OnabotulinumtoxinA Efficacy (CD PROBE; NCT00836017) is a prospective, observational, multicenter, real-world registry designed to assess the safety, effectiveness, and treatment utilization following multiple treatments of onabotulinumtoxinA.
The cost estimations are based on patient registry databases throughout.
