Exact(1)
When data are required for research purposes, however, navigating multiple jurisdictions' data sharing and approvals processes can prove time-consuming even when patients have given consent for their health information to be used in this way [ 13].
Similar(59)
We developed a multiple-jurisdiction data clearinghouse system (11 ) and assessed the benefits of the system in terms of timeliness, data completeness, and geographic depth of coverage.
Overall, we found that the data clearinghouse approach to biosurveillance offers many benefits, including ease and speed of implementation, improved timeliness and completeness of data, efficiency of scale from a central data-mapping operation, and the ability to deliver data to multiple jurisdictions.
The CDL uses this information to link data across multiple jurisdictions.
(a) Data location: Customer data held in multiple jurisdictions depending on geographic location [55] are affected, directly or indirectly, by subpoena law-enforcement measures.
The privacy dimension includes data security itself (from sensitive data, regulations and data loss to disposal and redundancy) and legal issues (related to multiple jurisdictions derived from different locations where data and services are hosted).
Storage of data in multiple jurisdictions and lack of transparency about this V30.
Without a hierarchical representation, it is difficult to aggregate data across multiple jurisdictions for these diseases, because different jurisdictions use different levels of granularity when defining their own disease reporting requirements.
Medical data are, in multiple jurisdictions, generally accessible to researchers only with prior patient consent, or if the data are adequately de-identified; this means, in short, that a researcher needs to gain consent from an individual before accessing her personal details to adjudicate suitability for the research and before contacting her to ask about potential participation.
Although data may be available for particular regions, there is a general lack of streamlining in data sets across multiple jurisdictions, as well as between hospital databases and public health surveillance systems in Canada.
However, future studies should assess data accuracy across multiple jurisdictions and across several cancers.
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