Exact(7)
It contains five health status scales: physical functioning, basic motor functioning, autonomy, cognitive and social functioning.
The differences were moderate for physical symptoms and large for motor functioning, autonomy, social functioning and positive emotions.
The TACQOL child- and parent form cover 7 eight-item domains of life: physical complaints, motor functioning, autonomy, cognitive functioning, social functioning, positive emotions and negative emotions.
Large effect sizes were found on four domains (indicating worse HRQoL on physical functioning, motor functioning, autonomy, and social functioning) three months after discharge and on one domain (indicating worse HRQoL on motor functioning) nine months after discharge.
The TACQOL-PF and TACQOL-CF assess functioning on seven domains: physical complaints, motor functioning, autonomy, cognitive functioning, social functioning (in relation to peers), positive and negative emotional functioning.
Table 2 also shows positive changes in HRQOL in the entire sample between 6 weeks and one year after diagnosis with regard to physical symptoms, motor functioning, autonomy, and positive emotional functioning.
Similar(53)
The TACQOL is a multidimensional instrument with 63 items constituting 7 scales covering aspects of quality of life: five health-related scales: pain and symptoms, motor function, autonomy, cognitive functioning, interaction with parents and peers, and two scales that represent positive or negative emotions of a patient: experience of positive emotions and experience of negative emotions.
Severity: severe = loss of independent walking (Brooke score ≥ 5) The HRQoL of the children aged 8 11 years with MD appeared to be significantly worse (p < 0.05) than the HRQoL of age-matched children from the general Dutch population, on four out of seven scales of the TACQoL: motor functioning, social functioning, positive emotions and autonomy (see Table 2).
Finally, better motor skills were associated with higher (parent reported) HRQoL scores on motor functioning (β = 0.24; p < 0.05) and autonomy (β = 0.30; p < 0.01), and with better self-worth; social acceptance (β = 0.24; p < 0.05) and athletic competence (β = 0.29; p < 0.05).
The Total Motor Score of the Unified HD Rating Scale (UHDRS) measured motor functioning.
The motor domains assessed gross and fine motor functioning.
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