Suggestions(5)
Exact(5)
Thus the motives to involve children appear to be leading for biobanks when they consider the role for children in the consent procedure.
The exact implementation (themes 2 and 3) is affected by biobank motives to involve children in the consent procedure (theme 1).
This case study shows that two other motives to involve children in the consent procedure, research interests and respect for the child, are of importance here.
Thus, for the biobanks that solicit follow-up efforts from children, both research interests and respect for the child are underlying motives to involve the child in the consent procedure.
Four themes linked to the child's role in the consent procedure emerged from the multiple-case study: (1) motives to involve the child, (2) informing the child, (3) the role of dissent, assent and consent and (4) voluntariness of children to participate.
Similar(55)
First, the wish to adhere to regulation that is aimed at the involvement of children in the decision-making procedure functions as a motive to involve children in all cases.
For 'one-off effort' biobanks there is no clear research motive to involve children.
Hence, this is a clear research interests motive to involve children in the consent procedure.
For all cases the wish to adhere to regulation is an important motive to involve children in the consent procedure.
The research interests motive to involve children is clear for biobanks which seek follow-up efforts from children.
Furthermore, biobanks that seek only a one-off effort from children do not have a clear research motive to involve children in the consent procedure, such as the residual tissue biobank in this case study.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com