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On the child impact section, the most prevalent items were related to "pain", "eating" and "irritation".
The proportion of survivors who endorsed each SCNS-SF34 item at either a 'moderate' or 'high' level was calculated with 95% confidence intervals and the ten most prevalent items and their corresponding domain identified.
The most prevalent items were: need for assistance in dealing with a lack of energy or tiredness (41%, n=100); coping with fears about the cancer spreading (40%, n=99); and coping with frustration at not being able to do the things they used to do (40%, n=98).
Of the non-domain-based items, the three most prevalent items related to patients' physical needs with over 40% reporting moderate/high needs in relation to dealing with lack of energy or tiredness, 28% dealing with pain and 27% dealing with feeling unwell most of the time (Table 2).
Most prevalent items in perceived stress owing to individual demands and commitment were stress owing to hard to set limits with a prevalence of 44%, high demands on oneself at work, 29% and high responsibility for one's work, 29% (Table 4).
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On the family impact section, the most prevalent item was "been upset".
On the family impact section, the most prevalent item was 'feeling upset or guilty'.
The most prevalent item was need for assistance in dealing with a lack of energy or tiredness, with 41% of the participants reporting a moderate to high need.
Similarly, unlike earlier studies which found the most prevalent item of moderate or high unmet need occurred among 27-40% of recent survivors [ 13, 17, 18], the most commonly reported item of unmet need in this study was endorsed by only 15% of survivors.
For example, if a large proportion of the sample endorses item A and only a small proportion endorses item B, it is consider inconsistentto have an individual who endorses item B, but not item A. If the items are ordinated from the most prevalent item to the least prevalent, a coherent vector of responses for a given individual is composed of 1s then of 0s, for example (1,1,1,0,0) or (1,0,0,0,0).
Of the 20 most prevalent need items, 50% related to patients' psychological or emotional needs and 45% to medical communication or information.
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