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Prospective collection as occurs in the biobanking context is not possible under traditional models of consent.
Our key finding is that people are typically willing to accept models of consent other than that which they would prefer.
The central finding is that people are typically willing to accept models of consent other than that which they would prefer.
The possibility that this group might have been more supportive of opt out models generally when compared with others does not undermine the central claim: people typically considered models of consent other than their preferred model to be acceptable.
For the vast majority of people, the range of models of consent that each individual considered to be potentially acceptable extended beyond the consent model that they considered to be most preferable.
However, if acceptability is a concern, then we should pay attention to those factors that people have expressed as relevant to their acceptance of different models of consent, including those models that provide lower levels of individual control than they would ideally prefer.
Similar(37)
Importantly, as with other studies there was no consistently preferred model of consent.
The result is encouraging for those who favour 'opt out' as a model of consent.
It is important to underline that concerns relating to the appropriateness of access appeared to be general concerns irrespective of the model of consent adopted.
Subsequent control of human tissue and data in such a model of consent is usually limited to a right to withdraw data and tissue for further use.
While people are typically supportive of health research, when asked to describe the ideal level of control there is a marked lack of consensus over the preferred model of consent (e.g. explicit consent, opt out etc).
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Since I tried Ludwig back in 2017, I have been constantly using it in both editing and translation. Ever since, I suggest it to my translators at ProSciEditing.

Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com