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The institutional review board approved the study protocol, and patients or qualifying family members provided informed consent before participation.
The Institutional Review Board at Chang Gung Memorial Hospital approved this study (96-1465B), and the patients' close family members provided informed consent.
The proband and his family members provided informed consent and blood samples under a protocol approved by the University of Washington Institutional Review Board.
At the time of the study, ethical approval was not required for surveys carried out by patient organisations with their own members, provided informed consent is received from participants.
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The Committee of Medical Research Ethics approved the study and all subjects, or a family member, provided informed consent.
All study subjects provided informed consent, and data collectors were trained in informed consent procedures; household members who could not provide consent because of physical or mental illness were excluded.
Family members were informed about the purpose of the study, and children's parents provided informed consent.
Patients provided informed consent.
All subjects provided informed consent.
All healthy volunteers provided informed consent.
All participants provided informed consent.
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