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As part of the IFDC project, a set of pre-defined outcome measures will be collected for infants enrolled in the IFDC project; these measures will be compared with retrospective matched controls cared in traditional neonatal care settings.
Quantitative and qualitative measures will be collected.
29 32 Quantitative and qualitative measures will be collected.
Not all measures will be collected at all time points.
Outcome measures will be collected at baseline, month 4.5 and month 9.
All measures will be collected at baseline, 12 and 24 months as outlined below.
However, almost all outcome measures will be collected using questionnaires without personal contact with the patient.
Two types of fatigue-related measures will be collected from the Actiwatch-S.
However, all outcome measures will be collected by a blinded assessor, unaware of group allocation.
Quality of life measures will be collected only if they are measured with generic validated tools.
Measures will be collected at baseline, post-intervention and 3-month follow-up.
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