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We would like to encourage researchers to publish more evidence on the importance of performing a TA during the PRO measure development phase.
The study included 105 residents with severe dementia participating in AwareCare - 40 in the measure development phase and 65 in the randomised controlled trial (RCT).
Ratings of resident awareness were made by a researcher in the measure development phase and by members of care staff in the RCT phase.
In the measure development phase, these observations were conducted by the researchers during five 30-minute sessions with each of the 40 residents.
The analysis uses data from the AwareCare study [ 18], including data from the initial, measure development phase [ 19] and data from the baseline assessments conducted for the randomised controlled trial of the awareness-based intervention [ 15].
Also included were 105 members of care staff, of whom 40 rated resident quality of life and behaviour in the measure development phase, 64 contributed both proxy quality of life ratings, ratings of resident behaviour, and other personal data in the RCT phase, and 1 contributed quality of life ratings only in the RCT phase.
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To align with the priorities of health care reform, occupational therapy practitioners can use the six-phase measure development methodology to define and evaluate the value of occupational therapy services in other areas of health care delivery.
However, the difficulties can be mitigated if suitable measures are taken during the development phase.
Figure 1 below illustrates an example of timing of TA during the qualitative phase of PRO measure development.
Although the Bronchiolitis Caregiver Diary (BCD) [4] and Canadian Acute Respiratory Illness and Flu Scale (CARIFS) [5] reported qualitative research during the instrument development phase, these two measures targeted populations other than infants and young children < 24 months of age with acute RSV disease.
However, we would like to reiterate that our research was primarily focused on the prospective use of TA, i.e., during the development phase of a PRO measure.
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