Exact(1)
The registrars use both passive follow-up methods (annual record linkages with sources including the California State Death File, National Death Index, Social-Security Deand Medicaidile, Medicase, and Medicaid) as well as active follow-up (contact with physicians' offices, hospitals, and patient families).
Similar(7)
At the beginning of their projects, several actors had established communication linkages with information sources that would later be incorporated into the knowledge network for this project.
Typically, the linkages with information sources were provided by members of the project team.
The University of Calgary and University of Alberta Research Ethics Boards have approved APPROACH registry data collection and linkages with secondary sources.
Given the restricted domestic capital options in Uganda, stronger linkages with foreign sources could potentially bring in "patient capital" that might offer funds for R&D in exchange for a reasonable financial return.
Based on the Victorian state population of 5.7 million, confirmed TSCI cases are estimated to have comprised less than 0.5%% of this cohort (ie. 15 cases per million population) (28), however, corroboration of TSCI would require data linkage with other sources, such as admitted patient hospital data, trauma registry or spinal unit records.
Future studies may consider linkages with additional data sources.
A TES should preferably include hard endpoints (eg, death, work disability, joint replacement surgery, hospital admission) from the TES with or without linkages with other data sources.
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