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Several linkage procedures are available to compute the distance between clusters.
The completeness and quality of the AIDS Registry (Conti et al, 1997) and Italian CRs (Curado et al, 2007) have been shown to be satisfactory, and the linkage procedures are accurate (Dal Maso et al, 2001; Clifford et al, 2005).
40 41 Probabilistic linkage procedures are used to add a unique identifier to all data sets to ensure all relevant records relating to an individual can be linked as required.
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Record linkage procedures were used in a multi-step approach.
Therefore, privacy protecting linkage procedures were utilized and all patient data was anonymized.
Originally, encoding identifiers phonetically before hashing them and using them with probabilistic record linkage procedures was suggested to achieve this [ 15, 16].
The frequent lack of a unique universal identifier causes additional difficulties because the quality of electronic record linkage procedures is always less than perfect.
Record linkage procedures were patterned after those developed by researchers for another study linking similar BLS case data to WC claims data [Boden and Ozonoff, 2008].
The linkage procedure was based on a de-identified numeric code originally assigned to each patient by the data provider (the only entity authorized to know the real identity of the patients), according to the Italian Legislative Decree 196/2003 on privacy.
The linkage procedure is performed in four steps.
The databank linkage procedures have been described in detail elsewhere [ 15].
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