Exact(3)
The national registration system in Sweden using personal code numbers for all residents makes it possible to link registries to one another.
Agreement on this core dataset for WABB and other very rare diabetes syndromes is essential in order to compare data between national registries, link registries and to identify subgroups of patients that may be eligible for clinical trials or to prioritise genes for mutation searches.
Participants will be required to give informed consent for the study participation, which includes the permission to store a blood and urine sample for future research; to link registries containing data relating to the participant's health (eg, pharmacy, hospital, general practitioner); and finally to link with mortality registries where applicable.
Similar(57)
Current efforts to link registry data with administrative claims suggest that, while data on ambulatory treatment is still underreported in cancer registries, it is more complete in contemporary data than in earlier studies.
The Norwegian health system records vaccinations of individuals and maintains linked registries to track effects and side effects.
Authors recommended worldwide legislation that mandates registry of trials and international linked registries [ 29].
After baseline cognitive evaluation, we will measure clinical outcomes using linked registry data at 12 months of study follow-up.
First, non-unique persons in the population (register) were excluded from the study population in the linked registry data.
Therefore, confounding by indication was not a problem in our study using linked registry and claims data.
Based on the linked registry data, our study population included children with an estimated time of conception after February 1 , 1996(n=668,468).
The merged database (Canadian Pediatric End-Stage Renal Disease Dathereforeherefore comprises linked registry information and hospitalization records as shown in Figure 1.
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