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The majority would still like to be informed when their personal information is being used for research purposes.
Almost half of the participants (48%%) would like to be informed every time their information is being used for register-based research (Table 2).
Although they would like to be informed, participants were still likely to consent but felt the need to know details of the research: "My own personal opinion, as much as I understand the maths of it, is I would still like to be asked".
We recommend that at the informed consent stage investigators ask eligible trial participants whether they would like to be informed about trial results and treatment allocation.
All participating patients would like to be informed about this topic by hospital websites, and 71percentt of patients rated this information as very important (see table 3).
TIKI: I like to be informed.
Similar(18)
One interviewee said that she did not need any information at all, but all other interviewees liked to be informed.
He likes to be informed, but you can take risks here — with John, with Hedi, with Victoire".
"He takes this job very seriously and he likes to be informed about the issues and a broad range of subjects," said Bryan Flood, a campaign spokesman.
The participants would also have liked to be informed that it was not obligatory to ask all of the questions provided by the system.
I like the big picture as much as anyone, but I like it to be informed.
More suggestions(18)
like to be reminded
like to be confirmed
wish to be informed
like to be conscious
like to make informed
like to be labeled
like to be caught
like to be proven
like to be scavenged
like to be stereotyped
like to be resolved
like to be left
like to keep informed
like to be insulted
like to be raped
like to be poked
like to be disturbed
like to be lost
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com