How are decisions made concerning artificial nutrition for individuals at risk of lacking decision-making capacity?
In the recruitment of children lacking decision-making capacity into research the child's assent should also be sought.
Decisions concerning artificial nutrition and hydration for patients at risk of lacking decision-making capacity were complex and multi-faceted.
In cases where scientific uncertainty is high, or data are lacking, decision-making is facilitated by making use of expert judgment.
Secondly, in the case of children lacking decision-making capacity (similarly contextualized), both the child's assent and parental (or locally relevant alternative) consent should be obtained.
The key research questions are: How are decisions made concerning artificial nutrition for individuals at risk of lacking decision-making capacity?
Internal barriers, such as gender norms not allowing a woman to travel on her own, women lacking decision-making authority, or economic concerns about indirect costs and loss of income, influenced their health care utilization.
The key research questions are: a) How are decisions made concerning artificial nutrition for individuals at risk of lacking decision-making capacity? b) What are the key decision-making factors that are balanced?
The number of individuals who may have a disorder which puts them at risk of lacking decision-making capacity is increasing as the age of the global population rises [ 5].
The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) (2006) 3 requires signatory parties to protect and promote the full human rights of persons with disabilities, including those at risk of lacking decision-making capacity [ 13].
A person is only considered to be lacking decision-making capacity for a particular decision if: all practical steps have been taken without success, they have a disorder or impairment of the brain or mind, and are unable to: understand the relevant information; retain the information; weigh the information; communicate their decision [ 14].
