Suggestions(1)
Exact(3)
There was a marked decrease, however, both in the range and number of justifications for consent but some justifications related specifically to information about deceased individuals.
The justifications for consent revealed participants' understanding of their rights as research participants, the functions that consent is generally perceived to hold (such as protection of privacy), the legal and ethical requirements surrounding consent as well as the social expectations surrounding consent.
Participants' views and justifications for consent were analyzed using the framework approach [ 23– 25], as it better tracks the processes adopted from raw data analyses to the interpretation of data therefore displaying greater transparency in the analysis of the data and the researcher's interpretation of the data [ 25].
Similar(57)
The greatest number of justifications for no consent related to the impact trying to obtain consent would have on the research but others spoke of the eventual use of de-identified data, the benefits arising from the research and the fact that researchers are not interested in specific individuals' data.
But some of the aforementioned justifications for informed consent better support other assumptions.
However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in socio-empirical research.
In Scenario 2 (Table 6) many of the justifications for the consent preference were the same or similar to the views expressed in Scenario 1.
However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in empirical research.
One of the ethical justifications for informed consent is that it provides a mechanism for treating the participant as an end in him or herself, rather than treating him/her instrumentally, merely as a means to the researchers' ends.
More than half the justifications for the consent preference in Scenario 4 (Table 8) related directly to the fact that researchers would be undertaking the linkage themselves and the perceived harms arising from researcher involvement in this process.
The majority of justifications for the consent option in Scenario 3 (Table 7) related to the sensitivity of the data being contemplated for use or the status of the research participants who were seen to require greater levels of protection via mechanisms such as consent.
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