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A key strength of the study is the involvement of experienced local palliative medicine consultants in determining admission appropriateness who, crucially, have very good knowledge of the local configuration and extent of health and social care services for this patient group.
This would necessitate the involvement of experienced users.
First, the close involvement of ALAT in all aspects of the study has led to the involvement of experienced researchers from several countries.
Independent generation of themes, cross checking between authors and involvement of experienced CBR professionals resulted in a rigorous and repeatable process and served to authenticate the results which were representative of, and grounded in the data.
We conclude that although high-risk autism research in Europe faces several challenges, the existence of several key factors (e.g., new and/or large-scale autism grants, availability of new technologies, and involvement of experienced research groups) lead us to expect substantial scientific and clinical developments in Europe in this field during the next few years.
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The Involvement sub-scale comprises one item about level of involvement experienced, which uses five categories.
The design of the tool and the involvement of trained and experienced medical educators is likely to have helped avoid the well-known potential for formative assessment to be perceived as summative [ 31].
Certain family factors (parent-adolescent relationship, household away from one or both parents, parental involvement) increased the adolescents' likelihood of experiencing externalizing and internalizing disruptive behaviours.
Limitations of the study include the involvement of 45 varyingly experienced centers in 17 countries and the failure to recruit the intended sample size (1300 patients).
Although the protocols for imaging to assess response for clinical trials are likely to differ considerably from those required to assess individual clinical response in routine practice, the key to accurate, reproducible assessment, for both types of practice, is the involvement of a radiologist experienced in oncological imaging.
Therefore, the meaningful involvement of 'lived experience' - the perspective of mental health service users or carers - in the study was an important value.
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