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Each interview was performed by two experienced interviewers, namely the CI [AB] and either a senior anthropologist [US] or research officer [WB], in the language of choice of the participant following informed consent.
A semi-structured interview was performed by a neurologist with special interest and competence in headache.
A semi-structured interview was performed by five medical doctors (three neurologist) with special interest and competence in headache.
For the validation study, a semi-structured face-to-face interview was performed by a total of eight neurologists with special training in headache.
An open interview was performed by posing questions about (1) the living situation, (2) quality of life, (3) unsolved problems regarding the underlying disease, (4) treatment options, (5) dying, and (6) the concept of an afterlife.
The interview was performed by an obstetrician.
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At each visit, a face-to-face interview is performed by a trained CheckpointLX peer counsellor and data are recorded using a structured questionnaire.
A face to face or/ and phone interview were performed by the researcher with the patient and informant using the newly developed Early Dementia Questionnaire (EDQ).
If the person agreed to participate an examination and interview were performed by a physician and a study nurse within 3 visits at the participant's home.
Quality control of interviews was performed by Jodi Parrotta.
Another limitation may be that the analysis of the interviews was performed by only one researcher.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com