Social mentalizing would thus appear to drive the interpretation of care issues.
We allowed for the widest interpretation of care delivery so that, for example, contact with any one of the neurologist, epilepsy specialist nurse, general practitioner with special interest in epilepsy, paediatric neurologist, learning disability psychiatrist or paediatrician, would constitute contact with epilepsy services.
This is crucial to realize since it is the words and interpretations of health care professionals that shape how families see their loved one's condition and can help or hinder families in their struggles to make decisions.
We can summarize the contemporary legal interpretations of terminal care, as based on the work of medical law specialists [ 25], in the following two points: 1) past decisions merely state the conditions for terminating treatment, and 2) if those conditions are not satisfied, then standard treatments must be provided.
35 37 Furthermore, decision support tools, including electronic medical records, will be needed to facilitate interpretation and point-of-care decision-making.
Our guiding idea may thus be more demanding of health care staff than some other interpretations of person-centered care.
Two items were added, after the experiences with the original survey; 'PV7: There are no misunderstandings in the interpretation of a care description between hospital staff' and 'PS6: Each care process is aligned and coordinated between the different healthcare professionals involved in the entire care process'.
Our results suggested numerous quality-of-data-related problems and prompted a very cautious interpretation of the quality-of-care-related findings.
It does not imply that health care staff should simply do whatever patients might say they like and want, as some choice-focused interpretations of person-centered care (e.g., Berwick 2009) can seem to imply.
Our guiding idea does, however, have several important advantages over previous definitions and characterizations of person-centered care, including strong potential to help overcome some of the issues with current interpretations of person-centered care that we identified in the second section of the article.
