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These instruments were sent to parents who were asked to make an assessment of the child's HRQoL over the previous 4 weeks.
The survey instrument was uploaded to an URL, available in Online Encuesta software (Online Encuestas, 2014); two instruments were sent via email to CUDI community coordinators and to the institutions with a CUDI membership.
With regard to the representativeness of the sample of CUDI members, it is noted that 230 survey instruments were sent and only 37 (16 %) answered; because of the number of responses received, it is observed that community coordinators are more committed than representative members.
All measurement instruments were sent to the patient's residence with a letter signed by the project coordinator.
Completed assessment instruments were sent to the evaluation team which was off-site from the state staff.
All measuring instruments were sent to the patient's home with a newsletter and an explanatory letter signed by the project coordinator.
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A questionnaire booklet, that included a number of separate instruments, was sent to each mother as her child turned 3 1/2 years of age.
Tolerance limits of screening equipment for ambient noise, durability of consumables, access to timely technical support and availability of loanable equipment when instruments are sent for maintenance/repairs should not be overlooked in the choice of equipment manufacturers.
Email messages that included a link to the screening instrument were sent to a random sample of panel participants in batches until quota requirements were met.
This approach allows pipelining of the data to an HPC environment in parallel while subsequent measurements are taken at the instrument and other instruments are sending data.
An adapted version of the instrument was sent for back translation to two other academics also fluent in English.
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