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At the end of index laparoscopic surgery and before removal of all instruments, patients were randomly assigned — via shuffled sealed envelopes — to treatment with PEG or no treatment groups.
They used all the sources needed for completing the different instruments (patients, professionals and clinical records).
In direct instruments, patients value their own experienced health state or described vignettes directly.
Overall, for the development of 12 instruments, patients' opinion was considered, for 10 instruments it was not.
When using multidimensional instruments, patients may improve on some dimensions and worsen on others, making it difficult to assess the overall direction of change.
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As with other measurement instruments, patient satisfaction questionnaires must be tested for validity and reliability [ 4].
For 7 instruments, the method of generating patient input was not reported and for 2 instruments, patient input was described as "clinical interactions" or "open ended survey".
For item reduction, in 56% of the instruments patient input was used and in 33% the item reduction process was not clearly described.
Results Instrumented patients had statistically significantly better outcome scores in 6 of 7 parameters.
It is the source of data used in the instrument: patients or family, health care professionals, or system representatives.
As assessed using the EQ-5D instrument, patients evidently followed an "inverted-U-shaped" quality of life path over time.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com