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A settlement between 41 members of the Havasupai Indian tribe and Arizona State University highlights the risk researchers take when they fail to secure what is known as "informed consent," fully informing research participants how their DNA may be used, legal experts and civil rights advocates said.
This process is important for fostering mutual understanding between researchers and participants and informing research ethics guidelines.
The researchers' obligation of identifying incidental findings and informing research participants remains a controversial issue as the clinical follow-up may require significant and immediate intervention.
A considerable body of literature on developmental assets has emerged in the last two decades, informing research and practice in education, social work, youth development, counseling, prevention, and community psychology.
DSCR emphasizes informing research participants about data sharing restrictions.
Vice versa, global or regional research priority setting exercises can be of value in informing research priority setting on a national level.
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Use this information to inform research priorities.
Making informed, research- and information-based decisions is critical to the success of the plan.
researchers and research institutions should inform research participants about new risks of re-identification as they emerge; iii.
Researchers can use evidence maps to inform research decisions and designs.
The failures have helped inform research.
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