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Women and newborn infants information will be obtained only after women have signed the written informed consent.
Information will be obtained from the group leaders in the sheltered workshops, informal carers or staff members in sheltered housing institutions and the person with ID.
Additionally, information will be obtained from secondary sources, such as national and international censes on health, and other important indicators of human well-being.
"If it is abnormal, we expect more genetic information will be obtained, and that we can steadily build a database that tells us how important the incidence of mutations in these two genes really is".
Despite a recommendation of an autopsy, many families will decline the autopsy based on religious/cultural beliefs, fear of additional suffering for the child, or belief that no additional information will be obtained or of value.
Generally, new and pertinent information will be obtained by collecting and processing the raw sensor data.
Hopefully, important information will be obtained which will increase our understanding of the limits of human performance, and in particular those which may be relevant for future trips to Mars".
Whether these mechanical settings affected the outcome was not well known, and more information will be obtained from an ongoing study in the future (SOLVE ARDS: Strategies for Optimal Lung Ventilation in ECMO for ARDS; clinicaltrials.gov identifier NCT01990456).
The latter information will be obtained via: (1) real time monitoring of events (e.g., initiation and completion of user activities) that create, manage, and consume multimedia content, and (2) tracing such events involving one or more users to user communities.
Relevant laboratory tests and other diagnostic information will be obtained at home or in the local pharmacy using point of care tools coupled to a smart phone or similar device.
This information will be obtained from participants only.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com