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All five prospective observational studies found a positive relation between appropriate information provision (satisfaction with the received information, fulfilled informational needs, high quality and clear information) and mental and global HRQoL and a negative relation between appropriate information provision and depression and anxiety.
Different aspects of patient participation, such as higher scoring for the definition of the importance of involvement, receiving information, fulfilled needs and higher overall satisfaction with involvement in care were all significantly associated with self-care behavior.
All patients who provided consent to release information, fulfilled study entry criteria, had a case report form summary page signed by an investigator and had at least one post-baseline assessment were included in the analyses ("eligible patients").
For more detail on the CHOICE study protocol, see Matthaei et al. 20 All patients who provided consent to release information, fulfilled the study entry criteria, and had a case report form summary page signed by an investigator were included in the analyses ("eligible patients").
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Based on the inclusion criteria of the review, key RCTs including Maki 2007 (gemcitabine vs. gemcitabine plus docetaxel) and Verweij 2000 (docetaxel vs. doxorubicin) and single arm studies including Sleijfer 2009 (pazopanib) and Bay 2006 (gemcitabine plus docetaxel) were excluded as these publications did not provide information fulfilling the inclusion criteria of the review [ 92- 95].
The richness and availability of information fulfills one of Yin's requirements (2003) when discussing the validity of descriptive case study research.
We hypothesise that better information provision (fulfilled needs, less barriers, clear and high-quality information) is related to higher satisfaction levels of cancer survivors regarding information that may impact HRQoL, especially mental health, and anxiety and depression levels.
None of the information leaflets fulfilled the IPDAS criteria for patient decision aids, which is unsurprising, as they are intended to provide mere information and are not directly targeted at involving pregnant women in the decision-making process.
Requirements for informed consent and other ethical and legal requirements for research using patient information were fulfilled at all study sites.
One patient information tool fulfilled seven criteria [ 34].
Only six out of 17 patient information tools fulfilled ≥50% of the (total score ≥15 out of 28) Picker Institute criteria [ 34- 39, 39, 41, 46].
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