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It is concluded that the informational websites offer helpful information for carers but seem less attuned to the person with dementia and do not offer personalized information.
– Information for carers.
Providing information for carers and patients: There are nine items in this subsection.
Solutions for community ownership were wide-ranging, but were themed around improving the accessibility of information for carers and the services for small and sick newborns.
Providing information for carers is a critical component of high quality dementia care, but carers do not want it all at once. 17 We have therefore designed our factsheets so that carers can be provided with information currently relevant to them or that they would like to think about.
An important element of realistic information for carers was that the DA reinforced the fact that dementia had a trajectory of decline and included stories about the increasing care demands this deterioration brings: 'The [DA] information is good because they point out that it is never going to get better.
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Information sheets for carers and people with dementia were approved by the Multi-centre Research Ethics Committee (ref no.10/H0701/71).
However, these results also suggest an opportunity to develop a more structured package or intervention which combines the kind of professional approach outlined above with an information pack for carers.
The information for family carers is instead presented in a separate information leaflet for family carers and the prompts illustrating the care goals are placed in a separate goal data dictionary.
Provision of information for patients, carers and family members is usually offered by the diagnosing clinician.
Increased support and monitoring by healthcare professionals would address some concerns, as would better information for patients, carers and the general public.
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