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According to interviewer assessment, most caregivers were deemed to have a good level of information and comprehension of the patient's condition at the end of life.
For the remainder of this paper we will however not focus on voluntariness, but on information and comprehension, which are becoming increasingly pressing issues for PGT.
There is a tendency to focus more on the consent i.e. the decision to participate, than on 'informed consent' which should be based on prior information and comprehension.
However, these limitations are common to the many surveys using the WMH-CIDI and there has been extensive development work to ensure the WMH-CIDI information and comprehension are maximised whilst respondent fatigue is minimised (Kessler and Ustun, 2004).
The dementia neuropsychological battery includes tests of clock drawing, verbal fluency, Mattis Dementia Rating Scale, Boston naming, verbal paired associations and recall, logical memory and recall, Word List Memory, Constructional Praxis and recall, Trails A and B, and Information and Comprehension subtest items.
In addition, we observed effects of Time 1 Reading on subsequent changes in the scores on the "similarities", "information" and "comprehension" subtests contributing to VIQ, consistent with the widespread benefits that reading is known to have on a range of cognitive skills (Stanovich and Cunningham, 1993; Cunningham and Stanovich, 1997).
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Cognitive interviews focusing on information retrieval and comprehension problems were carried out.
The high levels of information retention and comprehension observed during the pilot study led to a revised package of informed consent tools and procedures being taken into the main MDP301 phase III clinical trial.
One important fact is that both information and its comprehension are major elements of informed consent.
The flexibility and the adaptability of this system have been greatly enhanced by the emerging atomic-level information and improved comprehension of vault structure and dynamics.
Health communication may be defined as a relational process, crucial to the success of the treatment, based on cultural and sociohistorical aspects, in which information and its comprehension are exchanged between people (Gabarra and Crepaldi 2011; Wassmer et al. 2004; Zwaanswijk et al. 2011).
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