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Our study highlights that there is little opportunity for feedback within the system, for example, clinicians are not informed about attendance at education programmes unless the individual informs them, and there appeared to be no monitoring as to whether people may require information and advice to be refreshed or updated.
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For further illustration purposes, we used fMRI images from seven healthy volunteers under a resting state protocol (approved by the local ethical committee and under individual informed written consent).
Twenty-three candidates were narrowed down to one finalist, but in early December that individual informed the search committee that he was withdrawing his name from consideration.
Individual informed consent was obtained and confirmed by signature/thumbprint.
Individual informed consent was then obtained after oral translation of the consent form into the local language.
Individual informed consent was obtained from all participants or in case of children their guardians before enrolment into the study.
Individual informed verbal consent was taken for all HIV testing as per NACP guidelines, with pre-test counselling, and post-test counselling by trained health care workers.
Individual informed consent was obtained from all participants involved in the gene expression profiling protocols and was waived in the TMA study by IRB due to the use of coded data and retrospective nature of the study.
Individual informed consent was obtained from each adult participant and from the parents or legal guardians of all children at the beginning of the study and was renewed on a yearly basis.
Individual informed consent for data abstraction from routine programme records was not taken, as the collection of these data was considered by the institutional ethics committees and the National TB and HIV/AIDS Programmes to be a programme evaluation.
Individual informed consent was obtained.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com