Exact(4)
None of the publications included registry data.
Collected information included registry data on diagnoses, use of health care services, and prescribed medication for the period from 1 January 2005 to 31 May 2011.
Identified stakeholders from the literature review included registry participants (i.e. patients), clinical care providers (treating physicians often in possession of medical data), research ethics boards, and data users (researchers, governmental agencies, health medical organizations).
Key variables included registry history; population; current activity; incidence, prevalence, and availability of aggregated or individual patient data; treatment characteristics (dialysis type and modality and transplant status); and clinical and economic outcomes.
Similar(56)
Moreover, to take better account of variation between the cancer registries, we included registry-level random effects for cancer incidence and for MI ratios.
In short, socio-demographic information included registry-based information on age and gender from the Norwegian Tax Administration, and self-reported marital status ("married", "single", "divorced", "separated" and "widower/widow") and education (eight categories ranging from 7-yearss or less of basic schooling" to "more than 4 years at the college or university") from HUNT1.
The included registries operate as established registries with high levels of completeness of case ascertainment and follow-up [ 14- 162]62].
Included registries were those completed or with interim 1-year analysis at the time of this analysis (September 2011) (figure 1).
The completeness and data quality of the included registries are regularly assessed by the International Agency for Research on Cancer (IARC) or by European Network of Cancer Registries ENCRR).
Data sources for these studies included registries, claims databases, hospital and anticoagulation clinic electronic records (inpatient and outpatient), and national mortality statistics databases.
Registries that provided data on at least 1 of these outcomes were rated as having the best outcomes data; whereas, the next tier included registries offering partial information and/or surrogate outcome data like laboratory results.
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