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As "incidental research participants", their participation occurred unexpectedly in a supportive way of the individual enrolled.
Investigators and ethicists have been grappling with the question of how to address such incidental research findings for years.
By providing a direct communication channel it will be easier to consider the views of family members who could be affected by the return of incidental research findings.
Thus, the RAs allowed individuals, especially women, to seek input from family members before participation, and they allowed family members to contribute to the interviews as "incidental research participants" if acceptable to the enrolled participant.
Specific issues meriting consideration include the data collection environment, gender relations, preferred informed consent procedures, sensitivity about compensation, possible involvement of family members as incidental research participants, and privacy concerns due to a perceived sense of vulnerability.
While the team considered whether incidental research participants should provide separate informed consent, the team felt this would be too burdensome and disruptive to the discussions as they naturally unfolded.
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Researchers strongly support the offer of targeted and incidental genomic research results to participants.
Although these variants are often labeled "incidental findings," research has demonstrated that the identification of deleterious variants causative of hereditary cancer syndromes should be anticipated in individuals undergoing next-generation sequencing tests [ 2, 5, 7, 10].
As the field of genomics continues to develop, there will be an increased need for shared experience and guidance on how to handle the discovery of incidental genetic research findings.
We raise this issue because, although the ethical duty of the physician researcher appears obvious, the appropriate management of incidental findings in research studies has not been raised in musculoskeletal imaging.
Those views are typically treated as incidental to the research, but this has not yet been proven A study should be undertaken which varies venue backdrops and/or backdrops and foregrounds, but without varying the geometry of the setting.
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