At no point did the researchers have access to identified data from any of the data sources; contact level data were linked using a unique study identifier.
The second component pulls de-identified data from 17 silo databases within the UDOH enterprise for internet users to query and analyze the data.
Separating the data linkage process (where access to personally identified data is necessary), from the data analysis, so that personal information and health information are separated.
This study was based on public use de-identified data from the SEER database and did not involve interaction with human subjects or use personal identifying information.
The current study used de-identified data from the trial and was therefore exempt from IRB review.
De-identified data from the P5 cohort (the participants enrolled between 2005 and 2010) were used in the analysis performed at the Pennsylvania State University College of Medicine, and data were extracted in February 2012.
On its blog, Verily specifies that it will be working with "partners from academia, medicine, science, patient-advocacy, engineering and design," adding: "In the future, the intent is to make de-identified data from the Project Baseline study available to qualified researchers to spur new ideas across the broad ecosystem".
All human subjects data was publicly available de-identified data from The Cancer Genome Atlas project and the Rembrandt database, and thus, not designated as human subjects research.
De-identified data from the Study of Addiction: Genetics and Environment (SAGE) were analyzed for the research reported in this manuscript.
De-identified data from the participating studies were centrally collected and harmonised at Memorial Sloan Kettering Cancer Centre.
Individual patient data were pooled from 2 community-based, longitudinal studies, ARIC and CHS, available as de-identified data from the US National Institutes of Health.
