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Information regarding data handling (anonymity), informed consent, a description of the questionnaire (including the number of questions and expected duration), information about the research team and a link to the questionnaire was sent out later, via email and professional networks, along with an explanation of the study purpose.
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Many social services have struggled with how to handle anonymity over the years.
The interviews were conducted in private and all information used in this study was handled with anonymity.
The executive, speaking on condition of anonymity because Ms. Brown was handling the public announcement, said it was unlikely the Web site would be closed.
And in these media, avatars guarantee anonymity to users when handling sensitive information.
It would simultaneously have better facilities for handling identity online, while also providing better anonymity.
Responding to the questionnaire was voluntary and again information was provided on handling the data in terms of confidentiality and anonymity.
The study protocol was accepted by the Norwegian Social Science Data Services, which reviewed ethical aspects related to collecting and handling data (voluntary participation based on informed consent, anonymity of informants, and presence of appropriate data storage protocols).
But Julian Pike, the £450-an-hour partner at Farrer & Co who is handling the case, has instead gone down a novel anonymity route.
Anonymity was maintained at all times when handling the data, the names of the patients and professionals that appear in the transcription of the stories have been changed.
Data extraction was done by one of the authors who was not involved in the management of any of the patients and de-linked the deceased patients' information to ensure data anonymity in the subsequent steps of data handling.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com