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They said they had received consent for the operation from a family member legally authorized to give it.
Dr. O'Brien said he sympathized with the position of Dr. Therese Markow, the geneticist who had overseen the research at Arizona State and who insisted she had received consent from her subjects.
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"Claiming to have received consent, whether it is based in any truth or not, betrays a policing culture that refuses to recognize its own outsized power over those it alleges to protect and serve".
Note: We have received consent from each patient to publish this specific information.
After having received consent, the general practitioners fax the name and telephone numbers of the interested patients to the research team.
All biopsies had received patient consent and were anonymous.
Participants indicated they felt they had a good understanding of the study before providing their written consent, with many recounting the written and verbal information they had received before consenting.
Patients were only included in the study after the investigators had received a signed informed consent form.
A study in South Africa demonstrated that despite an apparent active parental consent response rate of 94%, only 65% of parents had received the information letter and consent form during a follow-up interview.
First, for each patient with informed consent who had received any study drug, we extracted the available ICU resource utilization parameters from the original trial data.
Upon reaching a participant on the phone, the interviewers summarized the introductory letter, asked the participant if they had received the letter, explained the consent process, and asked about plans to mail the letter back.
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Since I tried Ludwig back in 2017, I have been constantly using it in both editing and translation. Ever since, I suggest it to my translators at ProSciEditing.

Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com