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Some example CFQ-R items that were adapted to the PCD HRQoL measure include: "Did you cough during the day?" and "How often does CF get in the way of meeting your school, work, or personal goals?" Items were written to ensure conceptual, cultural and linguistic equivalence for North America, the UK and Ireland, by researchers from the USA, England and Ireland.
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Most striking was the importance of supporting patients in setting and achieving their own treatment goals (item 5), as demonstrated by the following statement: 'Patients need to be informed, so they can make the right decision about what is going to happen next in their care delivery' (nurse 4).
This study examined the rate of endorsement of mastery-avoidance goal items by elite college baseball players and explored the explanations given for endorsements, to evaluate how the players understood the items and their own responses to them.
The α score for the set of goal items = 0.97.
Two of the goal items had a ceiling effect.
The goal items had coefficients ranging from 0.57 to 0.78.
The goal items had moderate retest reliability (ICC's 0.57 to 0.78).
The goal items had modest retest reliability and strong content validity.
*5 patients were not included in the analysis due to missing responses for all goal items.
Two of the five goal items had a ceiling effect, and one goal had low content validity.
For the goal items, the missing responses were also infrequent, with a mean of 2.8% (range 0.4 to 4.4%).
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com