Your English writing platform
Discover LudwigExact(12)
Personal webpages and on-line data sharing platforms such as Consent to Research (Portable Legal Consent), Free the Data, and Genomes Unzipped are being utilized to host and share genotypes, electronic health records and family history uploaded by individuals.
To bridge this gap, this paper investigates the challenges surrounding such initiatives in view of three examples of current web-based personal genomic data sharing projects, namely Consent to research (Portable Legal Consent) f, Free the Data c and Genomes Unzipped (GNZ) g (Table 1).
Free the data c, Genomera d and PatientsLikeMe e are examples of these projects.
Free the data c is a project initiated by a consortium of organizations, managed by Genetic Alliance which is a non-profit health advocacy organization.
According to the "About Us" webpage of the project, "Free the Data uses a participant-centric platform that allows you to decide how much you share, and with whom.
Free the data project also warns participants within the privacy policy statement about the impossibility of guaranteeing absolute privacy due to the fact that "new vulnerabilities and threats appear every day".
Similar(48)
Much online information can be obtained free, like the data provided by the sites that Mr. Wild used.
In the free model, the data used has incremental forms using backward difference operators.
Many are free, and the data are safely backed up and available everywhere you have an Internet connection.
Eighteen patients remained progression free at the data censor date.
The patient is by definition not 'disease free' and the data of first evidence of recurrence are unreliable.
Write better and faster with AI suggestions while staying true to your unique style.
Since I tried Ludwig back in 2017, I have been constantly using it in both editing and translation. Ever since, I suggest it to my translators at ProSciEditing.

Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com