A secondary purpose was to provide the YPs who received a home visit with information about 'data linkage' to routine records, with the ultimate aim of gaining consent for data linkage.
One possibility is to consult community forums to gain consent for research projects, instead of gaining consent from parents only [ 35, 37].
Additionally, rules on using the data for publication and the process of gaining consent from the data's source also need to be taken into consideration; particularly, when the data yields a negative result which may make its use politically sensitive.
The lawsuit charged to Vanilla Ice was copyright infringement for not gaining consent from Queen and David Bowie for the use of a similar instrumental.
This randomised controlled trial has confirmed that an opt-out approach to home visits is more effective than an opt-in approach in tracing participants, gaining their consent to store contact details for future invitations to participate, and (for the YPs only) gaining consent to data linkage, however, this has to be balanced against the increased cost of the opt-out approach.
The challenges associated with gaining consent for the inclusion of identifiable data on research databases are well recognised.
Patients and family members' acceptance of a diagnosis is an important factor in gaining consent for participation.
They often mentioned the practicalities of obtaining consent when taking a photograph and gaining consent for group photographs was considered particularly difficult.
AFW, PH and HW developed the hypothesis, and AFW and HW supervised studies, analyzed data, wrote the manuscript We are grateful to Nigel Fisher and Michael Morecroft for advice on field work, Elaine Aldridge for maintaining the plants in glasshouse, and Hilary Whitworth for help in recruiting and gaining consent from subjects.
