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Candidates for core items were chosen from the established family of instruments (see Table 1).
All items had less than 5% missing data (mean rate of 2.1% per questionnaire), except for the four items on siblings' reactions (5-75-7%ssing dand) and the two items on breastfeeding 10-155% missing data); 580 (82.0%) questionnaires had no missing data for core items.
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[Examples of core items are cognitive skills for daily decision -making and mobility. Examples of optional items are certain aspects of memory function or pain.
You have a set of core items plus extras.
279 questionnaires had valid answers for the core items: search for CPI and expectations of quality differences in hospital care.
We included data only for those respondents who provided valid answers for the core items of our study: search for CPI and expectations of quality differences in hospital care.
Except for the above content, even for the core items was not conducted well in the reporting guidelines.
These results, in light of the item content and hypothesized conceptual model, clearly supported a 7-dimension structure for the core items: "Worries and distress"; "Fear for future"; "Guilt"; "Impact on daily organization"; "Physical impact"; "Impact on behavior with hospitalized infant"; and "Financial impact".
For these core items, seven stem questions were derived from the Diagnostic Interview Schedule for Children-IV (DISC-IV) and five from the Schedules for Clinical Assessment in Neuropsychiatry version 2.0 (SCAN 2.0).
The criteria used for selecting core items were as follows: 1. Applicability - the prevalence of responding "Not applicable" should be less than 20% in all the respondent groups.
10 The reasons being that validation and benchmarking data have only been published for the core items 11 and, additionally, respondents were more likely to complete a shorter questionnaire (one double-sided page, 10 15 min to complete).
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com