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This qualitative study aimed to investigate how severely affected MS patients and health professionals in Germany understand palliative care, what they associate with this approach and if, or how, they feel palliative care might help these patients.
The question of how severely affected MS patients and involved health professionals understand palliative care was singled out for this study, while we also hoped to discern what they associate with this approach and if, or how, they feel palliative care might help these patients.
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Even if GPs feel that palliative care does not automatically start with the diagnosis, in the case of cancer everyone is aware of the real chance that the patient will die.
Many nurses described palliative care as synonymous with chronic care and felt that palliative care is necessary for HIV-positive patients despite the introduction of ART.
However, overall it was felt that palliative medicine had a low profile for Core Trainees.
While most respondents regarded dementia as a terminal disease (96.2%) only 37.6% felt that palliative care applied equally from the time of diagnosis to severe dementia.
They felt that palliative care must be holistic and that is has the potential to improve adherence to ART as well as allowing a support system for both the patient and the family, throughout the disease trajectory: "Yes, especially, if the palliative care...was...started from the diagnosis then I think even the adherence to treatment would improve".
They want their children to achieve, and they're dissatisfied with what they feel are the palliative half-measures offered by pediatricians, psychiatrists, psychologists and learning specialists.
The extent to which patients and relatives feel that the palliative care is concordant with their preferences and values and meets their needs in the physical, psychosocial and spiritual domains? 2. What are the effects of the separate implementation trajectories on the quality of palliative care at the level of the regional palliative care networks or care organizations involved?
The extent to which patients and relatives feel in control regarding palliative care?
This means it is essential that all nurses are competent and feel confident in applying palliative care in their clinical practice.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com