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The changes needed to optimize European rare lung disease therapies include a commitment to develop empowered patient communities as advocates for therapy, the development of novel trial designs with new endpoints, and for regulatory bodies to be willing to accept nontraditional models of efficacy for orphan drugs.
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They worry that empowered patients will be more demanding rather than more independent.
Genuinely informed, engaged and empowered patients are a force for good.
If we want empowered patients and a patient-centred NHS culture, we need to create a positive environment in which they can flourish.
Even the most educated and empowered patients have difficulty asking questions and understanding their conditions.
Many more such linkages between enlightened clinicians and empowered patients will help us get to the prize.
The 14.5% opt-out of patients shows that the process effectively empowered patients to decline participation.
However, as the final goal is empowered patients performing self-management activities, further research on this topic is needed.
Uncertainty also exists as to whether report cards have empowered patients and/or improved health care quality[ 7- 10].
If appropriately empowered, patients' active role in the diagnostic process can minimise the risks of missed opportunities.
GPs thought that the guidebook backed up their advice, empowered patients, and encouraged them to take ownership of their condition.
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Since I tried Ludwig back in 2017, I have been constantly using it in both editing and translation. Ever since, I suggest it to my translators at ProSciEditing.

Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com