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This study has helped guide the development of the EHR4CR informatics platform and highlight areas where there is a need to clarify and emphasise data security, privacy, and information governance issues in the roll-out of the platform.
Health researchers, undertaking research amenable to quantitative analysis, once tended to emphasise data collected from clinical records (e.g. numbers of treatments or hospital readmissions) or from observations by health professionals (e.g. participants' abilities performing functional tasks measured on clinician-administered tools).
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This was a possibility due to continued effort of the National AIDS Control Program Phase III, which was initiated in 2006 and which emphasised data gathering, evidence-based program planning, and implementation of various educational activities for MSM.
While many observers of cloud computing tend to emphasise the data storage elements of cloud infrastructure, the paper by Boutaba et al. rightly emphasises the exciting role of distributed computation in the cloud.
All the studies we examined emphasise strong data protection measures to reduce risks of informational privacy breaches.
It is also important to emphasise that data from a single study carried out in one setting may not be applicable to other settings.
The government emphasised retained data was a vital tool for the security services and was necessary in order to safeguard national security and investigate crime.
Its importance appeared to be emphasised by data published on Sunday showing that foreign banks with affiliates in the UK account for a large share of international banking activity in London.
Contributions from the researchers' perspective emphasised that data, metadata and other documentation should be made available in order to be able to replicate the results of a research article and more data available means more scrutiny and getting more value out of the data.
Although imaging is extensively used for pre-operative and procedural planning, it should be emphasised that data demonstrating improved clinical outcome secondary to the use of imaging are still limited.
This was also emphasised during data collection.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com