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The authors were responsible for all elements of data collection.
These elements of data collection were discussed amongst the authors and finalised after pilot testing.
Central elements of data collection were a computer-aided personal interview (CAPI), a self-administered questionnaire, physical examination by trained personal (including assessments of body weight and height) and blood sampling.
Together, the three elements of data collection and analysis were aimed at producing a rounded perspective on physical activity for people with dementia which drew on both the scientific literature and the activities and experiences of practitioners.
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The final element of data collection was obtained three years later.
The final element of data collection regarding the continued employment and role of the nurse consultants was obtained from interviews with senior managers in 2008 and 2009.
To collect data based on approved CDEs, the data managers need to know the fundamental definition of the data element, standards of data collection, mutually accepted values or codes for the data element, and the acceptable data format for inclusion in the central database.
Clinic times and percentage of data collection elements collected will be compared across type of study site by data collection method.
Clinic times and percentage of data collection elements collected (from full set in Additional File 3) will be compared across type of study site by data collection method.
We tried to limit the subjective element by establishing the order of data collection and applying precautions during oxymetry.
The "Operating Principles and Technical Standards for Australian Clinical Quality Registries"[ 4] exhaustively specifies further desirable characteristics of clinical registries regarding the mode of data collection, data elements, risk-adjustment factors, data security and quality, organisation and governance, ethics and privacy.
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