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While this method seems efficient to protect the privacy of users, it reduces substantially the possible information to retrieve from such a dataset for research purposes.
The present study was crucial to the future use of a largely unexploited and comprehensive vaccination dataset for research purposes.
The data are stored in a format that allows the creation of a single aggregate dataset for research.
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The Gateway provides data users with a familiar Windows interface and their usual toolsets to access approved anonymously-linked datasets for research and evaluation.
End users, on the other hand, may want to access such datasets for research purposes in a domain they are familiar with, or out of curiosity for a new domain.
After all, in the case of the myPersonality project all users are required to register as "collaborators" and at least one Facebook data scientist is listed, suggesting the company has not historically been adverse to the sharing of bulk extracted datasets for research (though myPersonality appears to exclusively contain user submitted data, rather than bulk friend harvesting).
Data were provided by the Health Informatics Centre (HIC), University of Dundee, which has developed the record linkage of multiple routinely collected datasets for research.
The data source in the present study was the NHIRD which was made available through the National Health Informatics Project, NHIP in Taiwan which provides scientists with datasets for research purposes.
In Australia, State-based statutory cancer registries are considered the 'gold standard' for identifying breast cancer cases for research purposes and in recent years these data have been linked to other routinely-collected datasets for research [ 1- 3].
The GWA data will be useful for all research lines within the Rotterdam Study, and will also serve as a control GWA dataset for other research centres in and outside the Netherlands for both SNP frequencies as well as copy number variations (CNVs).
As the basis for our framework, we use the Alzheimer's Disease Neuroimaging Initiative (ADNI) dataset the largest publicly available dataset for AD research.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com