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Protecting the commons means adopting 'some rights reserved' as the data-sharing model". Over-exploitation, she says, would be "to have lots of these stores in different places on the web that disperse the information and we don't have a way to connect it all back up again".
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This will be obligatory to achieve the anticipated benefits of new data-sharing models in healthcare.
The International Serious Adverse Events Consortium's data sharing model.
In this paper, we define a novel and general data sharing model, Structured Sharing Communities (SSC), meeting this requirement.
The article traces the genealogy of the Minimum Information About Biobank Data Sharing model, created in the European Biobanking and Biomolecular Resources Research Infrastructure to facilitate collaboration among biobanks and to foster the exchange of biological samples and data.
Table 1 of Piwowar [ 38] summarizes possible classifications and the tradeoffs involved in selecting a centralized or competing data sharing model.
This data sharing model is currently being implemented in the UK (there is a coalition government commitment to information sharing by hospitals in England for violence prevention) and is advocated by WHO. 15 As a public health strategy the model is intended to be dynamic, interdisciplinary, and comprehensive (that is, not dealing only with particular categories of violence such as gang violence).
In addition to supporting planning and decision making, PSS can potentially enable better co-ordination between city, state and federal planning and infrastructure agencies, thus promoting a multi-scaled approach that improves local and national data sharing, modelling, reporting and scenario planning.
Current data sharing models and policies are not working.
The work focuses upon the European Biobanking and Biomolecular Resources Research Infrastructure BBMRII) and ongoing development of their Minimum Information About Biobank Data Sharing model (MIABIS).
The functionality of MetaNET can be further extended by including other simulation engines, and provisioning additional functions on demand from a user community, while keeping a consistent interface for models, data-sharing and functional use through shared workflows.
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Justyna Jupowicz-Kozak
CEO of Professional Science Editing for Scientists @ prosciediting.com